Lab Results

Allorahs last appointment with Dr. Pachman in Chicago was about a month ago and I finally received some lab results on Wednesday morning and then Dr. Pachman called me herself last night. It seems that she is impressed with Lola's recent labs. Her muscle enzymes are doing well and so is her liver enzymes, which had been on the high side for some time. This last time we were in Chicago, they started to decrease her Prednisone which was necessary to help lower her blood sugar and get her diabetes in control. It has been working and her glucose has been better and we are finally down to 7mg. a day. The Prednisone is a double edge sword, it helps control the inflammation that has wrecked havoc on her little body but at the same time there is so many side effects that she has experienced from being on this medication for 10 straight years, osteopenia, cataracts, diabetes, fatty liver syndrome. It has been tough but hopefully now some of those issues will start to repair themselves with her being on a lower dose and continuing to taper. Lets keep our fingers crossed. I informed Dr. P of this recent issue we have had with swelling and irritated lips. They look like they are just really chapped and they are starting to really concern me. She is starting to get real self conscious of the appearance. We thought maybe she was allregic to something she ate or to a lip balm that she used or lotion or something, but we havent changed anything like lotions or soaps or detergents and it still stays, we even tried giving benadryl with no change. So Dr. Pachman suggested to call her pediatrician or dematologist and see what may be going on as this doesnt sound like a JDM issue. Hopefully this is just a simple problem that can be easily remedied.