I got a call this week from Allorahs doctor and got some results of some labs. It seems all looks great and she is stable so we have the ok to start decreasing and weaning her off the horrible Prednisone. I am so ecstatic! She does want us to recheck her fasting labs as her cholesterol and A1C is still high but when we had labs drawn in Chicago she had ate breakfast and that may have increased her numbers so she will have those drawn on Monday when she goes in for her infusion. We are still waiting to hear about her X-ray results. Hopefully no calcinosis and no surgery. Yesterday she had some low blood sugar and my dad had to take her a fruit roll up. Her blood sugar was 53. She was running late and didn't eat any breakfast and she crashed. So lesson learned she informed me this morning. :) We got approval from her insurance for her very expensive IVIG infusions and she is set to go for the year. Every year we have to perform this song and dance to get prior approval and it's so stressful so we are good to go. Thank you Meghan at Dr. Pachmans office for getting this done. We greatly appreciate all your hard work!
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