Monday, May 9, 2011

Anxiety Stricken

So in the maddness that is Juvenile Dermatomyositis, a step back has been taken today. Allorah's doctor from Chicago called with some recent lab results from when she had her last appointment there on April 4th. Dr. P is wanting her to see the endocrinologist, Dr. Kaufman, in Albuquerque. It seems the long term dose of Prednisone that she has been on for almost 10 years has caused her to develop diabetes. Her insulin, glucose, Hgb A1C and triglycerides are ALL elevated!!! Why cant my baby get a break? Why does this keep happening? It seems that as soon as we think she is doing better, she is hit with a blow that knocks her down. I HATE JUVENILE DERMATOMYOSITIS, CURSE YOU, FOUL DISEASE!! So we are heading up to Albuquerque on the 17th for a consult as to what course we need to take. I am hoping that we can do this with maybe diet and exercise. It just really stinks because she is already on such a strict diet because of the celiac disease, a gluten free diet can be difficult for an adult let alone a child. So now she has even more restrictions! UGH!! She is such a trooper.

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