We are heading out this morning to go see Dr. Kaufman in Albuquerque to see what the first plan of action will be. We are all on edge and nervous. Allorahs stomach is in knots and I have tried to get her to relax. Easier said than done. We will see the diabetic educator as well.
I did hear back from the nurse of Dr. Garg, the metabolic disease specialist in Dallas, and it looks like we will be heading out to UT Southwestern on Memorial day and staying there until the 5th. We just want answers about this new condition. There's not much I know about it. Please say a prayer for Allorah today, as she is scared, as am I.
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Life as we know it is constantly evolving, moving and changing at speeds faster than what we can comprehend. This is our life and all the trials and tribulations along the way. This is her battle with a horrible disease known as, Juvenile Dermatomyositis. These are her days as a teenager and loving big sister. This is our journey on the road to a happily ever after. This is a glimpse into our everchanging life and the journey down our very own yellow brick road...
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